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Back from Los Angeles.
++ doctor can help
-- SIX surgeries and that is all before we can do the hip. And completely ignores the knees, which will also have to get done at sone point sooner rather than later.
-- OMG this is going to be nuts expensive
--- I have to pay out of pocket in advance
+++ Thanks to the fact that I am on the expensive health plan at Major NonProfit I only have a $1500 max out of pocket for out of network care so ONG expensive should actually be, essentially, free.
--- I will have to pay and submit for reimbursement. If they agree it's medically necessary. Otherwise I am screwed.
---- This many surgeries and costs may cause Major NonProfit to reconsider their self-insured status.
??? Though in the grand scheme of surgical costs maybe it's not so much?
??? But I don't think they expected to spend so much on one patient

Good lord I could keep this up for hours.

Progress?

Feb. 20th, 2024 10:30 pm
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Pump Guy came today and got me set up with the new multi-chambered garment. We only had me in it for about 20 or so minutes but I was moving better after. Will be interesting to see what happens after a couple full sessions- and I have to work harder on getting an aide. Because it is supposed to be twice a day for an hour at a time, and I can neither get myself into the garment nor get back into the compression stuff after.

And tomorrow the PT evaluator is coming. Apparently when your doctor puts in an order for home-based PT someone reaches out? Never happened before. Fingers crossed that it's helpful. Also fingers crossed that I can get an OT eval (presumably from someone else at another time), too.

And I have an appt scheduled in California with one of the two recommended docs that Dr. Stanford suggested that I see (the other is in Germany). And I just checked my out of pocket maximum for out-of-network care. If we do this right, it should cost me next to nothing, between my reimbursement and my out-of-pocket maximum. Fingers crossed - both for that AND for hoping that I'm not the reason Major NonProfit realizes self-funded is not a good way to go. Because between this stuff and the hip replacement (and two knees that are actually long overdue; trying not to beat myself up for ignoring Dr. Alarmist Orthopedist, who insisted I needed both knees done NOW when I turned 50... though glad in some ways that I did because we didn't know about the lipedema and healing could have been really compromised) it's going to cost a small fortune, and I can't imagine our stop-loss coverage will be happy about that.

This is the start of a long journey. Hope I am up for the trip.

Contract

Feb. 8th, 2024 08:03 am
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Well, we did "Stay until it's done" last night, and so it is.

With a bunch of issues I had raised in temporary agreements that, somehow, were never fixed. So now, f'ex, we are stuck with if the employee asks to work on a holiday they are paid time and a half plus they are paid for the holiday (thus 2 1/2 times their rate of pay). But if one's supervisor asks then one is paid double-time. Because that makes so much sense.

We were SO punchy by the end. But we celebrated with Insomnia Cookies (y'all, they make a GF chocolate chip cookie! I was presented with a box of SIX! No, I did not eat all of them) and milk and tentative hard copies were signed, and now we get to read it, and fix typos and such.

It got so late that I changed hotel rooms to move to one closer to the office rather than trying to roll over those crazy city sidewalks in the dark. It was actually a good choice.

I have been SO grateful for the aides I hired. I was worried about NYC Aide because they aren't actually an aide by training but figured out how to support me. "Hi we are going to be hours still. Would you please go back to my hotel, pack my stuff, and bring all of it plus my rollator back here?" So she did. And ended up sleeping in my old hotel room because easier to get back here rather than going home. Yes, gratitude pay is a thing, and I will be doing so.

This process also gave me a chance to sit down with the union attorney to try and figure out how to correct my exempt status (so I don't lose out on 4 weeks of my sabbatical, among other things; when I was promoted to a level presumed exempt no one ever made the switch, and yes, I qualify). He's working on it, and also seeing if he can right-size my salary (because Major NonProfit's isms were nearly on full display in their refusal to pay someone in my job title more). If nothing else, I might be able to push for Senior added to my already ridiculously long title. That's a whole 4 percent bump. Given that the only increases I will see over the next five years are COLA (because I am noticeably above the years of relevant experience at which the steps terminate - though less so than when Management proposed 18 years as the top!).

Now to try and shower, and get ready for the day. I am going to visit my time capsule at the office. Otherwise known as the cubicle space I haven't set foot in since just before the pandemic.
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In Union Bargaining. They had a sidebar discussion yesterday to try and work through the salary stuff and, yet again, I'm getting thrown under the bus. They are ignoring that my position is a front-line solicitor, and so much more.... and I only see COLA increases over the span of the proposed five-year term of the contract (though I can apply for bonuses - the thought of which offends me on general principle given that we're a non-profit).

Trying to keep my blood pressure under control. It's SO hard to advocate for oneself, and I shouldn't have to. And yet.

There is an opportunity for applying for a senior-level title after 5 years in position - which will be me this year - with a 4% bump - but it's appalling given that the position is exempt and a front-line solicitor and they think they can still pay it where they're putting it.

This just continues the appalling pay issues I've been fighting against since I was hired and I'm tired of it. I wish I could be one of those people who just does what's required and walks away from work at the end of the day, but that's not me.
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In my old age I have, apparently, turned into a high maintenance human! Flew my amazing aide from my Columbus trip out to my house (well, technically, to the airportand I sent a car to pick her up), where we packed. Took said car to the other airport - where I had hired a greeter and who arranged for a porter, and then there was the wheelchair pusher person... and bags were checked, and lounge achieved, and plane boarded. Do NOT like the new Polaris setup. Too hard to figure out the buttons and, without a pillow, lie flat is stupid.

Then it took a village to get me off the plane (managed to stand up on my own thank goodness, and the aisles so narrow I actually used the seats to navigate going and coming), and a greeter to meet us, get us and wheelchair person to baggage claim (in the Domestic terminal; we'd landed in international) and then off to rental car center we all went (technically against the rules for the greeter but she clearly didn't care).

Found a car (their ultimate choice section is Gold or President's Choice so I moved up in the world so to speak... but, if I were actually President's Choice I would not have been impressed with what they offered; my car was close to 35k, and that is normally unheard of at that level). Minivans are actually relatively easy to get in and out of, it turns out. And drove to hotel without adding Aide to the record because airport CarRental Company people were strong with the 'tude. Can add tomorrow if really necessary.

Hope for some errands tomorrow but we are expecting atmospheric river so not sure how that's gonna go. Medical appt Thursday while the rain keeps falling down. Then back to airport Friday (Polaris Lounge!), and to my old stomping grounds. In-person bargaining for the new union contract the 5th to the 7th, and home on the 8th. Aide goes home Sunday, and I have someone I don't know coming Sunday night, and helping the rest of the time. Oh, and I rented a powerchair. Really good thing, too, if how many times I paused in hotel corridor walking to the room is any indicator of my (non-existent) stamina.

But I met some nifty people today.

Now I pass out. My body thinks it's nearly 3am.
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I have turned into a human barometer. And, in addition to that, my body hates the cold. Well, my joints do and Reynauds means my hands and feet do, and what this all means is I am suddenly pondering retirement in somewhere warm. Because it is going to be cold and wet and rainy and windy and possibly snowy here over the next several days. Which means I expect I am not going anywhere until Tuesday - when I have to pick up DearFriend from the airport, weather be damned. Fun times.
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Met with a provider online this AM that is trained in a whole bunch of modalities I could use - but isn't doing in-home work right now, and currently doesn't have an office. So we were trying to figure out how they could be the best help to me (the person comes well-recommended, is a friend to a couple of my friends, and we've actually met before previously). Having spilled rather more about all my conditions than I usually do (and, hearing it, I am not surprised that all I mostly do these days is bed to office to bathroom to office... with mostly ordering in and rarely going to my kitchen) I realized "external brain" would be helpful. Someone to help me figure out who I should see, when, figure out what assistive stuff I could use, who to call, and so on.

Because, as I noted to this person, "Between the pain that causes executive functioning issues and the deficit I already have in executive functioning issues having someone to help track this all, figure out appointments, etc. would be really useful."

And then they told me to go to their website to schedule our next appointment, explained they're mostly working on weekends, they keep it updated if they want to take a vacation day, etc.

UM.

I was left wondering if they actually were listening at all.

(One of the reasons I love my dietician and my therapist is that part of their routine is to check in at the end and schedule our next appointment...as in my dietician goes to her website and schedules it and I get the reminder email...and my therapist just confirms our regular date or offers an alternative and I open my work calendar right then and get it on there)
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Fairy Godparent died this morning.

I came home after running some errands, and having dinner with a friend, and Sweetheart texted the news. So I offered to come over and sit in companionable silence (tossing my evening plans), and the offer was accepted. Presumably, due to the lateness of the hour, I am spending the night here.

Sweetheart is still seeing FGP's spouse tomorrow. My offer to drive has been rejected. I will endeavor to not worry overly much about Sweetheart's ability to drive given the challenging emotions. Inbtruth, given the day I have tomorrow, I would rather be at work. Among other things, our local office staff is gathering for drinks and conversation. The funeral is tentatively scheduled for Friday.
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Today was, overall, a decent day. Until...

Discussion of terminal illness ahead )

Oh, and it's my Dad's yahrzeit on the 19th.

Good thoughts, prayers, positive energy, and support gratefully accepted.
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Went on Wednesday for medical procedure info and other details ahead )

Nurse helped with the changing, and tried to get me to take off all the undergarments but I was like insert procedure name here ) and another nurse heard and said nope you don't have to. Thank goodness.

The amusing annoyance was how many people I had to argue with about the lack of requirement for a pregnancy test. Apparently a) the one I had a few weeks ago was no longer valid (hadn't realized it was part of the ordered testing until my GP told me I wasn't pregnant. DUH), and b) the presumed heterosexual despite all evidence and stated facts to the contrary is strong within them. But some rational doctor prevailed and I simply had to initial that I declined the test.

The annoying annoyance is that the pre-op unit was COLD. Like I walked in (well, rolled; my friend who went with me insisted on a chair from the start... the lack of independence freaked me out a bit but it was a spoons conservation win) and immediately said, "Oh hell it's cold here. Really cold." So as soon as I was on the gurney I asked for a blanket. They covered me with a paper thing, hooked up some sort of heater on the bed with a flexi-hose that blows warm air under it, and gave me a badly-placed blanket. Which friend fixed but, after 10 minutes, still cold (hello Reynaud's Syndrome) so asked for another. And Nurse was like we can't just keep giving out blankets, adjusted the paper thing so the heat was better aimed, and left. And apparently I was stressed enough about upcoming procedure that I didn't self-advocate. But still cold.

And then the painful annoyance.
more non-graphic, but descriptive, details ahead ).

Overall, other than First Nurse, the medical folks were all chill and with good humor, even the nurses I wasn't actually in the care of. Had fun schmoozing, and was coherent enough when I was going under to announce it. Brief moment of panic as I heard someone ask for a piece of equipment but then I was totally out.

However, I have now learned first hand why driving, or decisions involving judgment, oor machine operation are off limits for at least 24 hours. I had zero filters afterwards. Made a stupid comment via Teams chat during a work meeting I was invited to but not actually attending due to procedure and anesthesia. And a big chunk of Thursday was a mess, too. I just refused to engage with anything beyond really rote stuff for several hours. No people, no emails, etc. Next tine I am just officially taking the next day off.

Results were mostly positive. Herewith some results. Semi-detailed. )

I am going to have to continue to be really observant about what I eat that sets this off. Gone, I suspect, are the days of reveling in amazing food. They were already on the way out but I think they have well and truly left. Certainly gone are any trips where I go "Eh, to heck with it. I can suffer a bit. I am in [insert country here], for heaven's sake."

Bodies. Oy.
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Sweetheart is out of town so I've been hanging out with the cats. Sweetheart's upstairs neighbor, who is probably Sweetheart's closest friend in the building, comes down twice a day to feed the cats and do the caretaking of them. We often have great conversations during these quick visits but I wanted something more intentional so I invited her down for dinner last night.

Conversation was fun and rambling and where are you from originally and parents and librarianship and relationships and such when, somehow, I mentioned I'd gone (some years back) to my 25th high school reunion where I recognized each of the attendees except for one redhead (I should note my high school was SUPER small so this may not have been the magnificent feat it sounds like) - and I recognized her once she started speaking. That was NOT the hair color she'd had in high school. So Neighbor said, "Wow... Dad was at one of his reunions; he went to Science... and there was this woman, M, who knew everyone's name and birthday... like walked up to everyone and announced who they were and their birthdays..." and I was like, "Umm... how old is your Dad?" and she said "83." So I said, "Huh. Was that MD who did that?" and my friend was like, "Yes....?" and I said "MSD, who married Bob D. and is a genealogist?" and my friend said, "Yes... and Bob's best friend was [famous 20th century composer...]" and I said, "Yes! them... MD was my mother's best friend. I wonder if your father knew my mother."

Note that none of us live in the city where this high school was. Her Dad and stepmom now live in Michigan, and she and I are outside DC, and my mother lived in several other places post-high school, as well (though MD stayed in NYC).

And then we went on about MSD and Bob D. and that Neighbor made stacks of visits to their house while growing up (I'd been a couple times; they were one of the first family friends I had tea with when I moved to NYC in my 20s), and really knew them well.

So Neighbor called her Dad. And said, "Dad, do remember named someone named DL when you were in high school?" and he said, "Of COURSE I remember her", and Neighbor said, "I'm having dinner with her [kid] right now."

Long story short: next time her Dad and stepmom visit - or I manage to get to their city (which is the same city where Sweetheart's mother and stepfather live) - we are absolutely getting together to meet. And maybe I'll get to hear some stories about my mother.

Neighbor arrived this morning and, apparently, had further contact with Dad about all this (because I was all set to call MD to tell *her* last night about this amazing coincidence, except that the first link I found was her obituary; she died in November 2022. Last time I spoke with her was after my father died in 2020). Neighbor's dad knew that Bob D. had died in 2017, but hadn't heard about MD. And he, apparently, even knew my mother's married name. It's not clear if they'd stayed in touch or MD told him when they got married or how (maybe a wedding announcement) but the world got astoundingly smaller last night.

I've been back in touch with various of my former schoolmates (most of whom I haven't seen in over 40 years), and it's been great to get images of my childhood from them. It will be pretty terrific if I get to learn about my mother's adolescence, as well.

Oh stress

Jun. 30th, 2023 09:59 am
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Volunteered to sleep at Sweetheart's house while Sweetheart is away so the cats have some company. The bedclothes and I got in a wrestling match. I think they won. Add that to a couple calls from nature, and it was not a good night.

So I decided to head to Starbucks this morning because my head just wasn't clear. Did that and, while driving, realized the 303 Creative decision is expected today. After yesterday's Affirmative Action decision I am decidedly not holding my breath.

So now off to three hours of work, a stack of driving to pick-up new to me plants, somehow getting them upstairs, and back later to Sweetheart's.

Then up early to go to my house and back to Sweetheart's, probably staying through the long weekend. Because we are closed Monday. Would have been nice to have more than a week's notice of that.

Anyway trying to just keep swimming.
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Well, in my quest for new lights, I forgot one important thing. To wit, check the diameter of the fixture one thinks is going in the hallway. Because OMG too big.

However, the Universe is kind. Because I required a new light in my entry, and I couldn't figure out what I wanted there. The existing fixture was this ugly little thing that didn't throw much light. It had to go. But the ceiling is super low and I couldn't figure out how to get better lighting in there that would also look good. Enter the light for which I totally ignored the description (because I liked how it looked; as it turns out it is exactly the same light as in the hallways of Sweetheart's building - albeit larger).

Herewith I geek out over lighting. )

TL;dr: reasons for everything. And allowing for bubbling up organically may be a slow way to renovate but it results in better decision making.

And now onto my Saturday.
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My stuff was moved into my "new" condo last year in January, and I was fully in by April if memory serves. Since then I've been trying to figure out how to make it feel like home. I've gotten lucky that I've found some really nifty wall units for next to nothing (one literally; I just had to pay for someone to bring it here). Never expected that I'd want such things but they really work. And the light over my dining table was another that I got for free. It was always just a placeholder - albeit silver and glass isn't the worst for a modern light fixture and I was surprised how much I liked it. But then I was wandering the Community Forklift eBay page and found a fixture with cast iron and recycled glass and went WOW. And it was a quarter of the price new... so that's getting picked up today (along with a new fixture for the guest room hallway; I'd wanted to replace all the ceiling fixtures when I moved in but never found anything I liked so it's been piecemeal... but ever since the one in my office, essentially, exploded, it's been more urgent), and installed.

That got me pondering "real" dining tables. The one that I have is actually one left by the previous owners that I've kept under a tablecloth. Absolutely nothing to write home about but I have zero idea of what I want - other than I don't want it to look like it came from IKEA. But dining tables are expensive so I'm still just looking.

I did do one major change. I've ordered an adjustable base for the bed that is a bit over the top. In addition to all the up and down it's got some charging ports, some under-base lighting AND bluetooth speakers... so you can play (and feel) music whenever. Some changes have to happen to my existing bed to make the base fit comfortably and that's happening today. The base will be in on Tuesday. And then I ordered a Big Fig mattress. It weighs a ton - but it's designed specifically for larger folks and my current mattress really isn't (and is having issues because of it)... so that will take a couple weeks to come in. In the meantime I'll put my current mattress on it.

I've also ordered a couple rugs (a friend of a friend of a friend lives in Cairo and, when they lived in Afghanistan, befriended a rug vendor and his family... so she now coordinates sales of his rugs from time to time... incredibly good quality rugs at a fraction of what they would cost if purchased here; one just has to be patient about shipping time. The one that I ordered in April is finally underway and should be here in a few weeks (it's ELEVEN feet long!; still trying to decide where it should live) and I ordered another this morning (much smaller; it will replace the one currently in my entry which is so ugly but I had to get *something* there).

I've got a bunch of art that has to get framed. I think I'm holding off until Thanksgiving - when Michaels has their very best sales but haven't decided yet. The walls definitely require some more art or something.

Still trying to figure out what I'll end up doing with the kitchen (which, as a disabled person, just doesn't work for me) and so on... and other furnishings ... but it's getting there. This stuff has to develop organically for me and things bubble up as they do. So slow progress. Eventually this place will feel finished but it's a long journey.
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There is a new staging of 1776 that will be performed at the Kennedy Center this summer. It has been intentionally cast with gender and queer representation in mind. So I asked Sweetheart if there was any interest in going, and the answer was yes! So we are going to the last performance, and having brunch there beforehand. Sometimes living here is a nifty thing!
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I think I am still losing time. Can't believe how long it has been since I posted here. Oops.

Tons going on and I am trying to stay positive. However, last night I was at Sweetheart's. I was sitting at the dining table, and Sweetheart was in the kitchen. "Um, there is an actual dumpster* fire going on. Would you please call the emergency people?", I heard Sweetheart try to say calmly. So I grabbed my phone and tried to calmly dial 911, and calmly reply to the calmly asked questions. Which was made both easier and harder by the fact that I had not seen the actual fire. But Sweetheart was by the window, still, and provided the answers I couldn't. Sweetheart headed downstairs to meet the firefighters in case there were more questions. Firefighters rolled up pretty quickly, and I finally went to the window. Yes, actual dumpster fire, just like the pictures.

Credit to the firefighting folks, who took a bit of time to assess, and then got suppressant going, and then it was out with lots of smoke. Apparently we were second to call. Sweetheart's upstairs neighbor called first. Sweetheart asked a firefighter if there was anything else that needed to be done, and the firefighter said, "Well, you will need a new dumpster!"

Upstairs neighbor took on the task of notifying the building management, and there is a security camera that would have captured any activity around the dumpster so,presumably, we will know more about how it started at some point.

* I think dumpsters are council bins or skip bins in Australia? A very large metal bin that holds communal rubbish...
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I awakened super early to bring Sweetheart to the airport. On the drive back home I got a serious craving for lox. But not just any lox. I wanted the real stuff. Belly lox. Not this "nova" stuff that everyone has. So I pulled over a few blocks from my house, popped open a grocery delivery app, and went hunting to see who had it. Ah, my favorite Wegmans people. Hooray! Ordered belly lox, gluten-free "bagels" (note to self: find a better outlet for real gluten-free bagels even if your colleague has to fly them to you from NYC... yes, you could go to Goldberg's but it's not clear you should trust that the bagels they call gluten-free really are), "cream" cheese, and a handful of other things.

Groceries arrived, I unpacked, sliced bagel and into toaster, cut open lox, etc.

Took first bite and sighed (even though it was missing the cucumber and onion I'd planned to add; I was too hungry to cut anything up).

"Ah, I love it when I have a craving and I can make it happen," I said to myself.

"Yes, it's called privilege," my self replied.
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As part of a salary study, Major NonProfit has been trying to determine Years of Relevant Experience - so they can figure out what folks should be paid. Interestingly, when the salary scales were developed some years ago, there was insistence that the years should only be years at Major NonProfit; outside years didn't count. Now, suddenly, everything counts that counts... and they've calculated something like 34 years for me (hey, I'm old! and they counted every year at CarRental Company) after I pointed out a couple jobs they missed, conflated, etc. Interestingly, I had thought I'd have to fight for a bunch of that but no. Which is great.

Except that one job classification is pushing for themselves to be only years as that job classification. Which, among other things, privileges those who could afford to go directly on to professional school after college (because they'll end up with more years in the profession) - despite many of those in-between jobs having DIRECT BEARING on what they at Major NonProfit. Ummm.

But I'm proud of me because I decided there was no sense wading into that fight. I'm in a totally different department. And, as I said to myself, "Not my dog..." This is a moment of growth. And I'm excited to be there.
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Major NonProfit commissioned a salary study, and part of it is determining each employee's "years of relevant experience (YRE)". We're supposed to each be discussing this with our supervisors, etc. but I happened to have a super-late night discussion with our acting head of HR about it.

Lo and behold the extended discussion I'd expected to have (while fighting for more years) isn't going to materialize. They've already calculated thirty years for me (pretty much every minute in my various careers - and, when I mentioned other work experience, she completely agreed. I'll be pulling up resumes and pondering what all else to add. It's going to be likely around 32 or so when all is said and done. My cooking experience likely doesn't count unless the job involved frying donors or some such... though I certainly interacted with relevant people in several of those positions. But it's certainly harder to justify and, quite frankly, if we get a couple more years in there it's pretty close to what I've actually worked in my adult life, especially when one considers at least two full years were taken up with college (which falls into educational experience not YRE).

Goodness but I'm old! especially in terms of the folks at Major NonProfit. The current salary chart minimums max out at 10+ years (though that was originally intended as only years at Major NonProfit). So the discussion with my supervisor is going to be interesting... because there's some talk of keeping my current position at my salary scale and bumping me up 1 level to a "new" job. Part of this is because they promoted my other teammate - who leapfrogged over me into a position I declined to apply for - and they are likely earning more money than I am at less than half my age. But they were truly qualified for the position (I didn't even realize how qualified until their interview) and I would not have been successful in the role. And part of this is that they really do have to rectify my salary to more accurately reflect what I do at the organization. But salary is only one piece of the puzzle when it comes to pay - and I'm doing very well in terms of health care. I'll see what my supervisor is going to say, and take it from there.

And now I should likely get to sleep. This is the downside to working from home. I can stay up late, not get enough sleep, and still turn up punctually to my office.
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Well, he replied...

Please keep or make appointment as scheduled
 
1. Your esophagus was biopsied and there was no evidence of EoE
2. Celiac disease or gluten intolerance or sensitivity do not cause peptic ulcer disease( ulcers in esophagus, stomach or duodenum ) or esophagitis
I think NP V*** was only trying to elaborate on the causes of ulcers and gluten associated maladies are not usually a cause of ulcers or esophagitis
 
Please keep or make an appointment with NP V***
 
Thanks


And then he had the office call and schedule the follow-up. Despite their telling me AT THE PROCDURE that I had to schedule a follow-up endoscopy apparently that wasn't in the scheduler's "cases" - so she couldn't schedule it at this time. She did say she'd reach out to them and ask them to open a case and I'd hear back from her shortly but that didn't happen. Given that he wanted the follow-up endoscopy at 12 weeks and the follow-up talking appointment is falling at 6 weeks I hope we can get it on the books before then. Though if it's much later than 6 weeks after *that* I'm aiming for Passover Week so Sweetheart doesn't have to take time off from work to play "responsible adult" to the sedated me.

insert smash here )

Long story short: I'll go see the NP for follow-up and likely let this guy do the follow-up endoscopy following LOTS of discussion about how one biopsies for EoE, etc. He also wants to do gastric mapping and, due to some changes he saw, I'm inclined to let him so we can get baseline - which I hope won't be necessary in future but better to have it than not.

I do already have an appointment scheduled with another GI doc but it's not until MAY (someone referred by my dietician) so likely better to continue ahead with these folks but make sure I keep asking questions and so on.

And, as it turns out, the hospital system my PCP is affiliated with has a remarkable number of gastroenterologists - so that's a possible direction to go, too.
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Well, this has taken a while for me to write. Partly I was just so wound up and baffled that I couldn't write a response to the doctor. But another interesting thing happened. I went back to my dietician because, with this "new" thing I've pretty much confirmed I can't eat PLUS all the other protein-containing foods that I react to with differing symptoms, I wanted to make sure that I can still maintain nutritive value in what I eat. And nearly the first words out of her mouth were "did he biopsy for eonosiphils?" To which the answer was, of course, no. So having my sense of my diagnosis confirmed I finally sat down (just now) and replied to the doctor's message.

Just a reminder that I had asked about the impact of my non-celiac gluten sensitivity, as well as requested an explanation of length of time he thought I might be on the medication he prescribed, and noted that one part of my condition is incredibly rare [as in studies show only two percent of ALL upper endoscopy patients have this symptom].

What he said... )

Because it's me, it's a bit long-winded...
What I said... )

I just don't have patience for a doctor who wants to follow a standard procedure that ignores the fact that I present with nearly EVERY SYMPTOM of a particular diagnosis and didn't BOTHER to, apparently, even CONSIDER that diagnosis. Particularly as it's on the rise - and studies are showing that's not due to medical awareness of the issue. It's really on the rise.

As [personal profile] synecdochic asked, "Why are so MANY doctors such TRASH?!"
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So grateful to each of you who commented on the last post and those who are simply keeping good thoughts for me. Thank you all!

Update to follow when I am on my computer instead of my phone. Quick preview: I suspect I am firing this doctor at some point.
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Was running massively late to my appointment for the (Pfizer; having had all of the options for initial injections I just flipped a coin) but called and they were like no worries. So was injected by a pharmacist what really knew her stuff, got redressed, and left. Apparently you no longer have to wait 15 minutes? Dunno. No one told me to.

And my friend who was coming over was also running late so I acquired sushi etc for lunch for both of us, dropped off a bento box to sweetheart, and headed home. Friend came over for a couple hours, and I didn't have much of an appetite.

Fatigue has now seriously set in, and I am going to bed at 640ish pm. Hoping that knocks it out of my system. Last shot knocked me out, too, though not as quickly. Wish I had remembered that as last booster was also Pfizer. Don't remember that happened with Moderna. So tired that I canceled on my family's fortnightly Zoom call.

Presumably tomorrow is typical Sunday. Be car service for Sweetheart's errands, and then we cook together.

But sleep first.
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If Rev. Warnock wins in Georgia (please Universe!) then Joe Manchin loses a heck of a lot of his power.

I'm okay with that.

Drowned

Nov. 11th, 2022 09:28 am
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Well, as evidenced by things like phone calls promised and left unmade, emails to doctors that have to get written and aren't, and a remarkable disinterest in normal self-care I think it's obvious I'm just drowned right now.

I actually used a more graphic descriptor in therapy yesterday.... I said I was in the middle of a pile of manure and, every time I got my head clear and could breathe again, someone lobbed another shovelful in my general direction.

In no order whatsoever:
Nearest colleague (who assumed my major job responsibility when they were hired) is out recovering from surgery. And Manager's mother died day before yesterday. I knew she was ill and hadn't asked recently. Apparently they'd started hospice on Friday. We're a team of three so, as one might imagine, this is a lot of work for me. Thankfully, Manager has said "Focus on the basics... reply to people who contact us and try to get the receipts done..."

BUT that's been complicated (as she knew) by the fact that my Major NonProfit laptop is dying (apparently I've got the oldest laptop currently deployed) and not drawing browser screens properly, taking a very long time to load stuff, etc. So I'm now working on two computers... mine and work's... thankfully our programs are web-hosted so I can actually do most of my work from my computer (and thank heavens I always buy 17" screened laptops) but now I'm bouncing between the two and it's challenging to be sure. Got good technical support from our Database Administrator on how to re-point all the things that normally download to the work servers... and, thankfully, we don't have any rules about not being able to send this stuff to personal computers (or we'd be sunk).

They are supposed to be sending me a new laptop, asked for where to send, brand of my docking station, etc. But THEN I got a request to send a picture of my docking station, and I pushed back. I said, "My computer is so old... why don't you all presume that the docking station won't be compatible [this because I *know* it's not compatible with the first round of new laptops they issued to people] and just send me a new one with new hookups, etc. As a not-fully-able-bodied person I don't want to try and get pictures of the docking station only to discover I end up disconnecting something I can't easily reconnect [which happened previously; working on one monitor until I could get someone in to look at it SUCKED]." So we'll see what happens there.

(I note that, in this move to get people able to work from home, there has been ZERO discussion of exactly whom is supposed to set up one's home office, lift monitors into place, crawl on the floor to get cables plugged in, power source up, etc. I'm actually going to be asking for money to hire Sweetheart to do it when the new equipment arrives)

Did a medical procedure the other day that is supposed to result in less pain. Not seeing it yet but they cautioned it might be a bit. Interestingly, another joint is now even more ticked off than it used to be.

Got flu shot on Tuesday. Waiting a bit to do bivalent COVID (as in like a week or so) just to make sure I don't end up with overlapping side effect (though, presumably, I'm clear of side effects from the shot at this point; injection site was, however, surprisingly sore last night. This entry is, clearly, sponsored by the comma!)

Some personal stuff going on that is hard to manage.

A very long-term leak in our building's roof, directly impacting my unit (the remnants of the last hurricane were quite noticeable inside). The building is certain they've now sealed up everything they have to seal - and have gotten a price from a contractor to close up and repaint my entire living room and dining room ceiling. However, we're expecting more storms this weekend so I hope they'll recheck it before proceeding (yes, there's a giant tote under the opening in my ceiling).

Increased chaos in my space. There just aren't enough designated places for things and I just toss them wily-nily. I can't function like this.

And more. Lots of more. But it's 9:30 and I urgently have to dive into work.
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I still have to update the adventures of Schubert the Cat but I just wanted to note, for posterity's sake, that we had a 6 hour power outage on Tuesday at my place. Trying to figure out the food consquences of such a happening (and very glad that I ignored Sweetheart - who said "Oh, you can open the fridge once just to get out what you want to cook for dinner" - so that maximum cold stayed cold). Still have to deal with getting some frozen fruit off the tray it's on and freeze more.

But I wanted to note this for posterity because I've always been a person who doesn't turn on a lot of lights. So the dark was NBD. But the silence?? That was unnerving.
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Tl;dr: he is home.

I will edit this post tomorrow with the story when I am on a computer at home, and not my phone at Sweetheart's.
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I just got off the phone with Sweetheart. She had her window open overnight and one of her cats (Schubert) pushed the (already not fitting correctly) screen out and is now missing. She lives on the first floor but it's not a level with the ground first floor so he had a noticeable jump to make (easy for a cat, I know). He's a large (about 15 pounds) gray cat - thankfully with a collar that has his name and Sweetheart's phone number on it. He is an incredibly friendly cat, likes to be held, etc. and so forth. Thank goodness.

He has, at her invitation and with her standing there, gone out on her balcony a lot but never out in the neighborhood on his own. He was a foster whom she adopted. I don't know how much of his history she knows - though I'm guessing it's quite a bit. Presumably she would have known if he'd been an outdoors cat before.

She walked her building's property calling for him but nothing. She left a carrier out with some food in it. She's now starting out on walking around the block. She's got a neighbor who has helped care for the cats (the other is Pebbles - she came with the name and it was simpler not to change it though Sweetheart has a nickname for her) and I think she's calling her next. And she's posted on her neighborhood Facebook page.

I am a wreck. I'm trying to decide if I should just take a personal day. I've already told her that I'll drive around if she wants me to (presumably I'd drive and she'd be in the passenger seat looking for him). He sprints away from dogs (there were noisy ones out in the hall once and he went FLYING the length of the apartment to go under the bed).

If anybody has energy to spare for his getting home safely I'd be grateful.
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So this is a post where I actually write with an audience in mind instead of just for me and you all happen to be reading along.

Sweetheart has been hunting for years (see note about "this was written before the series was done") for two HP fanfics that were much loved, and would like to read again. As you might imagine, Sweetheart has checked many of the usual suspects but no luck... and so I turn to you, my friends, researchers, writers, and readers all, in hopes that you can assist. PLEASE feel free to forward, ask more questions, point me at things you think might fit, etc. I haven't been able to find these but I'm not playing in the Worlds of FanFic, either, so I imagine my skills are lacking. Thank you, in advance, for anything you can come up with!

The premises are as follows:

Story 1:
It was written before the series was done. It's a many chapter work. The premise is that the war isn't going well and Hermione helps Harry go back in time. Instead of going back a few months or weeks or whatever Harry is sent back to his eleven year old self. He is sorted into Slytherin but Draco immediately becomes friends with him.Draco helps Harry get his "muggle born booklets" which teach him so. many. wizard things he didn't know. I think that in the later chapters he, Draco, Blasie and Hermionie become friends. He might steal some of the horcruxes and destroy them in the first year as well.

Story 2:
This is another multi chapter work. It takes place well after the war years. Harry is all grown up. He lives in the country and Snape lives down the road a bit. There is a little girl (a weasley?) who lives or visits often who gets Snape and Harry talking by bringing them flowers back and forth. They end up in a relationship. I remember a part of it involves them watching Deadliest Catch and there is a huge tragedy with the little girl.
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First, there are no Black women in the US Senate. Vice President Harris is no longer a senator (and she was only the second Black woman to be a US senator).

Second, for the first time in history - as has been noted lots of places - White men will not be in the majority of justices.

Third, also for the first time in history, there are three Black senators seated at the same time in the US Senate. Also, Black folks are over 12 percent of the population (according to the Census, which is data I am never sure I can trust, esp here where it feels like an undercount).

Fourth, none of this would have happened if the election in the state of Georgia had not gone as it did. Mitch McConnell had bragged about how he tied up nominations to any number of courts. There is no reason to believe that he would not have done that for this historic nomination, too.

Yes, this is a moment in history to celebrate - and I normally have a very positive outlook on life - but this all gives me so much pause about change ever coming to the United States.
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Finally switched my prescriptions to a pharmacy with a drive thru...but it never occurred to me that I would still have to wait on line to pick up my medications. Oops.

Still, I am so grateful for the number of spoons that I will save getting my prescriptions like this. And hey, waiting means I can write this entry, too!

I really can use this downtime. It has been feeling all stress all the time lately. Getting to just chill out in my car - after a bit of a harrowing morning is good for my head. Here's hoping that I can have a focused productive afternoon at work.
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Another night when I should have headed to bed hours ago. No idea why this keeps happening. And AndTenor is visiting for the weekend. I had plans for tomorrow. They may be tossed in favor of sleeping.

Ugh.

Omg

Mar. 23rd, 2022 11:43 am
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Is Lindsay Graham truly whining about the use of the filibuster?!?
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Why body? I gave you the decent meds. Okay, so they weren't the guaranteed to knock me out for five hours wake up go back to sleep fifteen minutes later and sleep until I actually well and truly awaken on my own meds (those were the night before but I couldn't awaken on my own schedule so I was left feeling groggy, wanting a nap for much of the day, and not terribly sharp work performance), but they were supposed to last more than an hour and a half!

So I tackled Wordle, Byrdle, and Nerdle. I read email and DW and such. Have not returned to the WWF games I was playing before bed; they take a certain kind of energy that I don't have at the present time... and thankfully I am starting to feel a certain lassitude drifting in as I write this so I have some hope of returning to sleep...

But, before that point, I want to briefly gush about Sweetheart. Because, earlier today (today in my head still being Tuesday), I got a text about, "Do you want to see Hannah Gadsby in person?", and said text was followed by "[local theatre]".
Why yes, yes I do. And called Sweetheart whilst simultaneously jumping on said theater's website to figure out show times and seat locations. I was stunned that the ticket prices were so reasonable (and wondering if that is typical for this part of the country versus that of from whence I moved), and - for once - thanked the disability that means wheelchair seating is not only wiser than the alternative, it's pretty much required for this situation. Because it means, if the seating chart is to be believed, that we may actually have a bit of space around us. That makes this first outing during the Pandemic a touch more manageable mentally. It does mean that I am contemplating renting a chair instead of using my trusty rollator because I have zero idea of the walking distances involved, not to mention the serious elevation in pain levels. Which comes with its own challenges (said rental, I mean) but perhaps they will be worth it. I are so of teh excite about this adventure.

And now it feels like perhaps my body will allow me to sleep more so I will end here, and leave other updating for future.
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Got email from a donor. "I tried calling and only get a voicemails [sic]."

Well, gee, person! Do you think if you actually left a message someone might be able to return your call? Is it possible that one might have to step away from the phone, be in a meeting or, (gasp!), be speaking with another donor when you called? Or perhaps you tried reaching us outside of business hours?

And then of course I call the number provided. Lo, what happens? I get voicemail. Of course. So I left a message and am also replying to their email.

I love connecting with our donors but, sometimes, they make it all so challenging!
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Well, I have finally learned to listen to that little voice in the back of my head. The one that didn't like any of the custom bookcase options I was considering. The one that wouldn't let me spend OMG money on a set of antique barrister bookcases (but SO beautiful!). Instead, it sent me to Craigslist - where someone in a nearby town was selling a tall maple bookcase similar to one I had when I was younger, with shelves on top and doors over two shelves on the bottom. Sent the queer movers to pick it up and bring it to my bedroom. Moved the bookcase that had been on the wall with the windows into the space right outside my study, where I was wrestling with the ostensible custom piece. It's too narrow for the space on its own but I had a tall narrow cabinet like a pie safe, and it didn't have a home. So I put it next to the bookshelf. Looks decent, albeit a touch wider than I had in mind. But I'm getting used to it and now the cookbooks are in the two bookcases nominally in the dining room, relatively near the kitchen. So that saved a not-insignificant amount of money. The kids' books are in one set of shelves in my bedroom. The other is empty. Still trying to figure out what's going there. And the tall maple cabinet will likely be for all the music books that are paperbacks (carols books, The Renaissance Singer, etc. and so forth). I think I'm going to have to folder and file the octavos, etc. In truth, I'm not really sure why I've kept so much sheet music. Even if I start singing again and I sing pieces I've sung before I always start from a new copy. After all, I might make different mistakes. Certainly there will be different markings from the conductor.

And then the two bookcases that ended up in the living room have my LGBTQ books and the TBR pile. There's something like 70 books in that pile but at least they look good neatly shelved.

The bookcases in my entrway don't match but, as they're no longer directly next to each other (I put the console table between them), it's not totally noticeable. And I actually left some empty shelves on them so I have room for growth in those sections.

Two bookcases ended up in my study. They have all the relgious and spiritual books. Given that all the hymnals, etc. ended up in the built-in that came with the place I think that's actually an organizational win.

I've started hanging up art. The large clock went into the foyer. Ditto my mirror, which is now over the console table, between the bookcases. Other things are scattered about. The Noah's Ark print (technically signed and numbered but damaged; I bought it in a broken frame and glassless at at sreet fair) is at the framer. It turns out that the colors go beautifully with the futon that is in the guest room so it will go up over that. I'm actually happy about the guest room. Enough room for a queen-sized bed AND the futon couch. Of oourse it did mean I smooshed the side of the bed I can climb into way too close to the windows but most of my friends who would stay in there are able-bodied so it shouldn't be an issue. My wind chimes are up indoors, just as they were in NJ. They're adjacent to the balcony so, if I want true wind chimes I can just open the balcony door. But I've lived near out-of-control wind chimes before. I will not subject a neighbor to those (and I would never have bought these but they were a gift from ny Criminal Justice mentor when I finally graduated from college... and they're tuned). The Santa Fe Opera poster is in the dining room where it belongs. Etc. and so forth.

All of this is to say things are progresing.

Unfortunately, these days I am mostly bored by work. We have plans to get me (finally) trained on queries and exports in Raiser's Edge so I'll be able to do true analysis. Not having the home office computer setup done makes it hard to write thank you notes, but I have a pile that need doing. And there are plans for several other projects, as well. Glowing review from my manager. Here's hoping it will result in the raise and bonus I requested. Unfortunately, despite assurances of transparency from Management, all we know is that there is a "pot of money" from which raises and bonuses will issue forth. We don't even have a sense of what percentages they might be giving in terms of raises... but it's been ages since we've had any performance review system in place. Apparently the one we did something like 4 years ago essentially vanished into smoke. So fingers crossed something good comes of this. They've announced raises are retroactive to September, when we got the COLA increases, ao that's something.

Trying to settle into a routine. Not easy.

And today had some challenging moments in health. Ended up ending my work day early and I might take the full day tomorrow too (was supposed to be out in the AM for PT already - except my physical therapist is out of town so Sweetheart is scheduled to come over and help with more unpacking). We're closed on Monday so it should be a good weekend.

Well, I think it's time to make some tea and curl up, relatively speaking, on the couch to watch mindless TV.

Onwards.
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Well, this move has definitely been a process. And I can't actually say I am, as yet, feeling like it's home. But progress is being made. Today I had the queer movers back yet again for more unpacking. It was mostly "Well, let's see what's in this box... great, put it in the guest room" but we did find more glass apples (thank goodness! though still more are still MIA). We actually loaded the mirrored glass cabinet (with built-in lighting) a few weeks ago and OMG I knew that was the best purchase ever. The cabinet, I mean. They look stunning. I have the two glass shelves that they used to live on and I have zero idea where they will end up. Thankfully, Sweetheart found me an amazing 3 piece (well 6; each piece splits for moving)solid oak cabinet some time ago. For free. And it has glass cabinets (albeit neither lighted nor mirrored) into which most of my glass collection has gone and a stack of the apples that won't fit into the mirrored cabinet.

Today was also "okay, I think the display shelves should go on wall x so let's move the loaded TBR bookcase to another wall after we move all the plants down the wall so they stop getting directly blown on". The plants are already looking happier about the less blowing though it will remain to be seen how they feel about less light.

And other rearranging and so on. Also ordered the sofa table. The table for the entry is due to be delivered in a few days. Once that's built and in then I have to reassess the bookcases in the entry... as in "Can I actually put my four matching stackable bookcases here?" I am not sure the color will play nicely with the new table. Crossing bridge when there, etc. Lots of books are getting shifted around and lots more will be... don't want the cookbooks so far away from kitchen but, until the bookcase I'm likely custom-ordering comes in (which means I have to order it), there (half of them) will live Oh and there's still a box of them to unpack. As ever, not enough bookcase space. Still trying to figure out the bedroom books situation. Interestingly, here, the only super tall bookcases I want will be in the entry. Everything else is way shorter. Which means them scattered around the place. Organization (and having room for expansion) is going to be challenging.

Still have to figure out the recliner situation in the living room, as in how to resolve it. The previous folks had SO much stuff in here. I'm definitely going more minimal BUT not minimalist. Not a look for me. And I have surprisingly a lot of art (including a stack of stuff I have to get framed) so much of this is also figuring out what I want to look at where. Unfortunately, I do think a bulletin board is going to have to go up over my desk so I can get important numbers and such up.... but maybe smaller than I think? I don't know.

The kitchen and primary bathroom are challenging. They are both SO different from any other bathroom and kitchen I've had that trying to make them work (and be accessible) is rough. I have a good friend who will likely come visit as Omicron diminishes - and we'll keep super distant - to help get those both more organized. Perhaps will get a hand with the multitudes of "misc" cartons I have to still unpack, too.

The office still has to get officially set... monitors connected, laptop running from a docking station, etc. but I've made strides there. The built-in bookcase and cabinet are filled with books. It's coming along.

The biggest challenge is that no one seems to understand why "Oh you don't have to unpack everything all at once!" doesn't work for me. I have to get this to a zero point so I can return it to a zero point. If I'm living in chaos I risk always living in chaos and since I can't live in chaos (it will literally drive me nuts) then I have to get unpacked and set up. But there's not enough places for things yet etc. and so on. A fully set up residence means I know what it's supposed to look like and can likely figure out how to return it to that point. Not there yet. Not by a long shot.

But bed soon. Tomorrow I work a handful of hours and then off to Sweetheart's house for an appointment and dinner and overnight there. Sweetheart's folks (mom and stepdad) are visiting this week so I'm taking some half days. Hoping that might help with setup, etc. too.

Onwards.
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Yesterday a move actually happened. It took forever because the building has stupid rules they didn't tell me about regarding moving (must go from truck to elevator; can't unload into a hallway, e.g., which makes the whole move SO much slower, esp given the small elevator we were using). But all my stuff is there minus the stuff that is at Sweetheart's. It is, truth be told, a bit overwhelming. I'm trying to get used to the idea that it is my home. Saturday I have three guys coming to help move some of the furniture (because I'm not thrilled with where it is) and to do a stack of unpacking. And I have to figure out where the art is going. And the bookcases. And where I will still have to get bookcases. And at least one console table. And rugs. And where I am putting my childhood rug.

I really hope I can make this place feel like mine. The new paint color helped immensely - but I've been living in what is, essentially, temp housing for the entirety of the pandemic (Sweetheart's house, the hotel we had to stay in, the apartment we had to stay in, my apartment after she moved back home, and now here at her house because there's limited space to move at mine - not to mention no internet) and it is really odd to realize I am home.

And tomorrow is a snow day for Sweetheart. Entirely unexpected because DC doesn't like to close (especially right after winter break) for a stack of reasons but Sweetheart's school follows DC. They were originally planning on a delayed opening. But now DC has announced closing so they are closed. Sweetheart is ecstatic. I am still working from Sweetheart's house. I am less than ecstatic.

Step by step. Trying not to freak out.

In process

Dec. 29th, 2021 08:49 am
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Sunday was a long day of pre-packing and packing.

Monday the packing team came and I worked ahead of them with a helper to keep going on more packing. They were mostly good but made some problematic choices.

Tuesday a crew of FOUR arrived and the way the company offered to resolve those issues from the day before was to get things re-packed while the others worked and not charge me until the re-pack was done. This saved me an hour's time. I am certainly not complaining. So the move was billed at three hours and everything easily made it into my storage unit after the movers did a bit of rearranging. And one of the leads they sent I want for my lead next week.

Then I headed to condo to look at my new shower seat (too large, I fear, but going to live with it and see if I have to change it out; it was a custom piece and I couldn't visualize the measurements - nor did it occur to me to measure the current plastic one I'm using). It's teak and beautiful. I utterly refused to get one of those hospital-looking white plastic things. And Contractor and I discussed placement of the grab bars. Always so hard to figure out where they should go. Hoping I guessed right.

And then helper came over, got the couple things destined for condo that didn't make it the other day (when we brought over my plants; hoping they will be okay while construction is ongoing but didn't have much of a choice), and then we went to condo to clean out fridge and freezer. Moved a bunch of stuff to the condo and other stuff to Sweetheart's house.

Yesterday was exhausting... and compounded by the fact that - when I called the building to confirm my move date - the office manager said they were going to pad one of the passenger cars for me as the "freight" car is still down. In this building the freight car isn't large by any definition and the passenger cars are even smaller and I'm trying not to be concerned about how long this will all take. The elevator is always the pinch point for a move - and your move can only move as fast as the elevator. This is going to be rough, I fear.

Cleaning of apartment happens tomorrow. Cleaning of condo happens Friday. This process just keeps rolling on. And so does my stress.
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So medical stufff:
No hernia seems to be present but everyone agrees something is there. So next stop is a dermatologist on January 3rd.

So moving stuff:
Contractor is going great guns and hopes to be done tomorrow?! BUT the building I am moving into called and said, "Hey, you know all the elevator issues we're having? We were wondering if you could move in a week after you'd planned to? We'll waive the move-in fee. Otherwise, we're happy to give you one of the two elevators that are (for now) up and running..."

This was going to be a semi-complicated move. Packing one day, and moving stuff out of both my storage unit and my apartment the next day. Two 3-man crews. Two trucks. Etc. So complicated I wasn't entirely sure how I was going to be there to let them into my apartment AND my storage unit at the same time! But it made SO much more sense to do it that way than to have one crew go to apartment, drop off at condo, then on to storage unit to load it and drop it off at the condo. That just leads to exhausted movers.

So I said yes. Still pulling everything out of the apartment on the 28th but sending it to the storage unit. Here's hoping there is enough room in there! Then, on the 5th, I'll move out of the storage unit and into the condo. Turns out there is a 5 day grace period for paying said storage unit so I won't incur another month's charges. It gives the contractor another week to finish if he wants it (he says no, right now, but ask him this afternoon; his guys really don't want to work tomorrow and it's unclear if the building will let them anyway... ditto NYE).

The condo itself looks pretty amazing. I ended up re-doing most of the bathroom (because the Universe spoke). I've never had a bathroom set up to my exact specifications before and it's gorgeous. And then the paint color for the house looks fabulous. Second time's a charm! I had them paint everything the color I had in my condo in NJ when I first moved in but the color may have changed over the years or the light was that different but OMG beige undertones that looked HORRIBLE. So I asked them to throw some samples up on the wall for me and I changed it everywhere except the kitchen and bathrooms (where there is less natural light; it really works in those places).

And it's the end of the year which, work-wise, means it's pretty busy. About to dive in for a half day and then off to PT. Fun times ahead!
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Figuring that having folks know about this can only be to the good, especially because typing it out will keep me calm.

A few weeks ago I noticed my belly developed an upper roll that was not like the rest of my belly. Felt very different. Didn't feel like any of the underlying stuff I have. Mentioned to my therapist. She said, "Huh... like a hernia?"

Fast forward a few weeks and I get in to see a doctor who isn't my (admittedly new to me) GP. FABULOUS connection. Unfortinateuly, she's normally an ID specialist at FDA, and volunteers one day a week at my clinic. Not scared to use big words. Listened carefully to what I was saying. Palpated the area with care. Found tender spots I didn't know existed. And she concurred with my assessment (she even said, "Well, thank you for asking me to consult on this") and plan forward. Which is to say that I go get a CT ASAP, ultrasound being unlikely the differentiation we will need for this. She also agreed that, in these situations, we look for horses rather than being concerned we're seeing zebras.

So scheduled the CT and was informed, "Oh you have X insurance; you require pre-authorization so we'll schedule you for a week from now." BUT actually my company has a Third-Party Administrator who has determined we don't have to have pre-auth... but they wouldn't listen. Called my TPA and was told yes unless you're being admitted you don't requrie pre-auth for any imaging (thank goodness; I remember back in the day when an insurance company wouldn't authorize an MRI until one had tried PT FIRST .... um... how do you know what PT is required without an image of the injury??). Was told I'd get a call back and didn't so called yesterday.

"Oh yes our pre-authorization department has determined you don't need a pre-authorization. How's Saturday?" which is, of course, great because hernias are nothing to sneeze at (nor apparently - per my OT - things to do deep breathing at, singing at, or anything else that heavily involves the abdominal muscles.

Prelim diagnosis from doctor is actually a pretty rare hernia but ugly complications if it gets on to for too long. Oh and of course the only way to fix it is surgery.

I am trying to stay calm. And recognize these usually can get repaired laproscopically (or however that's spelled). But I live alone and I am not fancying having to manage post-surg on my own. Guess that's a bridge for when I get there.
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Well, today is going swimmingly. I called my Third Party Heath Insurance Administrator to ask about home health care. Apparently I'm covered at 100%, which is great. So then they tell me that the company with which we have the insurance contract (the contract they administer) has a vendor who coordinates all the home health care, and they can connect me directly to them.

They do that. Call is answered by someone who needs to send me to the home health care department. That person says Oh I only do existing cases. You have to open a new case. So they transfer me to the new case people. Who want my insurance company ID number. The one we don't have because we use a Third Party Administrator.

So she can't find me in the system and then tries to call the Third Party Administrator but doesn't have the information the automated system requires. She tries hanging up on it but, instead, hangs up on me (not before she confirmed a call back number) and leaves ME connected with the automated system at my Third Party administrator! And I haven't gotten a call back yet from the person at the vendor providing place.

So now I'm calling back my third party administrator to say what's the magic number I have to give to the insurance company so they can find me in their system???

This is the ultimate in ridiculous.
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Negative rapid test. Got flu shot while there because why not?

Time for dinner with Sweetheart in a car picnic and then heading home for more sleeping.
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Went to PT earlier today. Told my therapist about my symptoms of late. She said we'll do the appointment but you should go get tested after this. And so here I sit at Urgent Care waiting for the rapid results. Presumably if it's positive they will want a PCR to confirm.

My Pshrink, when we had an emergent phone call Monday, had urged me to get tested but I blew it off, insisting I have a cold.

And so I wait.
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Well, the Universe decided my nose could stop running like a racehorse but traded that in for horrendous headache, inability to look at screens, nausea, etc. It was like migraine plus sinus headache and - other than calls from nature - slept until 2:30. Which oould, I suppose, be seen as a gift... because taking a day off from work and stress is a good thing right now.

Have since had fancy coffee delivered (because caffeine) and have ordered pho, etc. from a Vietnamese-ish place nearby. Picked them because they have a vegan broth option. Had pho yesterday from a pretty remarkable place yesterday but long delivery time and I didn't want to wait. I think I have to make chicken soup and get it in to the freezer for times like these... because I really don't want all the sodium etc of take-out, not to mention all the noodles in pho (lymphedema and lipedema like higher-protein intake, as it turns out. Makes perfect sense - though folks don't talk about it much... maybe it's too much science).

So yeah, quiet day at home sleeping. I wrestled with getting food because I really want to go back to sleep but I suspect getting some food into me is a good idea - paricularly as the nausea seems to have faded enough that food sounds possible (who knows once it gets here?) - but then I think it's going to be more sleeping. Because, in truth, I want to go back to sleep now.

Really hoping I feel better tomorrow. I have PT - and apparently I have already cancelled a bunch of times so really have to go. Fingers crossed.
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The Universe has a very strange sense of humour. More than 18 months of wearing a mask, washing hands, using hand sanitizer, etc. and yet, somehow, the Universe decided to give me a cold for my birthday.

I can't even.

Real lunch

Aug. 26th, 2021 12:22 pm
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I have been running so on empty lately. Blood pressure is up a bit, stress over various things continues, grief continues, and on and on. And I have this habit of sitting in front of my (work) computer and eating lunch. Yes, sometimes backgammon or other browsing happens but I decided, today, to take my lunch and actually sit in front of my very own computer.

Yes, it would be nice to get away from screens entirely but just being out of my study and seeing my plants is doing good things for my energy, and then I can re-tackle with vigor today's tasks (which include the receipting that I haven't done for a year and a half. Wow am I rusty! But, interestingly, the current person ALSO couldn't remember how to deal with non-deductibles because we've been virtual for so long).

Ever onwards.
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Today I went to the tile store to meet with the rep who works with my contractor. He provided some options for my bathroom that I thought were uninteresting (I'd made it VERY clear to the contractor's project manager that this is not my change to make my bathroom into a "spa experience" or anything like that; I just want practical). I suggested a wood look and he found one that was great. It was also $2/square foot less expensive than the one he'd picked out (the contractor had also told him my budget was seriously limited).

And we're doing the niches that everyone has started doing instead of the sticking out shelving, soap dishes, etc. of the past. It's unclear just *where* those niches will end up but we priced for two of them. And, despite my wanting to avoid it looking dated (because let's face it EVERYONE is doing a stripe of glass tiles in showers these days and it's just looking old), I decided to put small square glass tiles into the niches. So the box walls, ceiling, and floor will be the wood-look and then the back wall of each niche will be the pale purple glass tiles. I did ponder the idea of just having a super-modern look and have the entire niche be the wood-look tile but the entire bathroom is playing "Variations on a theme in Beige Major" so I thought some blips of color will be nice. Obviously towels, shower curtain, etc. can change that but I wanted some of the fixtures to have some feature interest. And I am NOT one of those people who makes sure that everything perfectly matches... had a cousin once say, "What colors are your bathroom? I have some towels that aren't working with my new colors; can you use these?" and I tried very hard not to laugh. Yes, it looks more "put together" and, if I find something that makes me happy to have it all match I'll do it. But I'm not tied to it.

Had to pick a trim I wasn't thrilled with but it's the least offensive to my eyes.

Also found a possible floor tile for the foyer. It wasn't part of the original quote to do the floor in the foyer (tiles are breaking but not in obvious ways so why spend the money now?) but it's a nifty very different wood look tile that I think might go well with the parquet hardwood. Forgot to take the tile home with me so I'll have to go back and pick one up. Have to lay it next to the parquet to make sure it will work. It has a lot of "movement" as one hears on home design programs. I liked it.

Onwards.
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Well, after being on medical leave from CarRental Company for over two years they decided to no longer hold my position for me. I did get them to revise my status so I may reapply when I am ready to return to work. But as a new employee, not one with ten+ years seniority. I will miss the camaraderie, and several of the managers. But I think that I will also miss the discount on rentals. It not only helped me out but, over the years, it helped countless friends who urgently required a rental vehicle at various times and who, but for me, couldn't afford one It never paid well (though I had a couple remarkably good days) but the discounts made it worthwhile.

And today is one year since Dad died. I continue to be grateful that I was in my own home when that call came in last year, and not with Sweetheart. It was good to be surrounded by my stuff, including a huge quantity of things we had shopped for together, and many of which my stepmother and he had assembled for me.

It has been a somewhat odd day. Started it by lighting a yahrzeit candle and saying Kaddish.Then my cleaning person came and, when she was done in my study, I dove into work. I note I had requested today (and tomorrow) off, but I have been behind enough that I wanted to dive into it a bit. Also got my new recliner delivered and had the regular therapy appointment.

Sweetheart reached out early afternoon and noted that she wouldn't get to see me today if we didn't get time together in the afternoon (as her sibling and sibling-in-law arrived today for a wedding so they had plans together for tonight) and she didn't feel good about not seeing me. So she came over and we had some quiet hanging out time. Then I took the long way to my favorite sushi restaurant (in addition to remarkable food, they have curbside pickup!), and had a car picnic under a beautiful tree and near other special growing thibgs,and had classical music playing on the car radio. Now to pick up fancy coffee, drive home, and chill for the rest of the evening.

Tomorrow is PT and, at some point, time with Sweetheart et al. Maybe some work, too. Not sure. I do know my workaholic father would not have been thrilled at the thought of my missing work because of him.

It's starting to rain. Best onwards towards home.
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